Great things are going on at RMHBDA!
Education Weekend 2015
February 27–March 1, 2015
Hilton Garden Inn, Bozeman, Montana
|Friday, February 27|
|4:00-6:00||Family Registration and Industry Exhibits (Larkspur 2)|
|6:00-7:00||Dinner, Welcome & Introductions, Sponsored by CSL Behring (Larkspur 1)|
|7:00-8:30||RMHBDA Annual Meeting & New Board Member Orientation (Larkspur 1)|
|Saturday, February 28|
|7:00-8:00||Breakfast Buffet (Larkspur 1)|
|8:00-8:50||Infusion Session, Nancy Spomer, RN & Amber Casey, RN, HTC - UC-Denver (Larkspur 3)|
|8:50-9:40||Advocacy Training & Healthcare Update, Ryan Faden, CSL Behring and Kim Isenberg, BaxterHealthcare (Larkspur 1)|
|9:45-10:15||Exhibit Time and Coffee Break, Sponsored by HF Healthcare (Larkspur 2)|
|10:15-11:30||Industry Presentations, in this order, Pfizer, Grifols, Novo Nordisk, Baxter, Octapharma, BiogenIdec and CSL Behring(Larkspur1)|
|11:30-12:20||HTC Update and Informational Session, Judy Primeaux, RPh, M.A. (Larkspur 1)|
|12:30-1:30||Lunch, Sponsored by Baxter (Larkspur 1)|
|1:30-2:20||Constructive Conversations, Gladis Murillo, Pfizer Hemophilia, BSN, RN, (Larkspur 1)|
|2:30-3:30||Breakout Sessions on Relationships:
Blood Brotherhood for Men, John Beck, LCPC, MEd, MA,(Larkspur1),
Blood Sisterhood for Women, Julie Eaton, LCPC, M.Ed. (Larkspur 2)
|3:30-4:00||Live Performance from Our Kids, Presented by Beyond Recreation, (Larkspur 3)|
|4:00-6:00||Free Time, (PLEASE NOTE: Adult supervision NOT provided by the Chapter)|
|6:00-8:00||Family Fun Night & Pizza at the Bozeman Bowl|
|Sunday, March 1|
|7:00-9:00||Breakfast on your own. Thank you and safe travels!|
|8:50-9:30||Sean Jeffrey, Steps for Living, Room 2|
|8:50-9:30||Youth (Ages 10 and up) with Beau of HF Healthcare, Room 3|
|9:30-12:00||Field Trip to Spire Climbing Center (All Youth 10 and up, or who want to attend) TAKE SNACKS|
|9:30-10:30||Beyond Recreation, Anne & Mike (Ages 10 and under), Room 3|
|10:30-11:30||Beyond Recreation, Mike (Ages 10 and under), Room 3|
|11:30-12:00||HF Healthcare, Beau (Ages 10 and under), Room 3|
|12:00-1:00||Montana Raptor Center Presentation (ALL YOUTH) Room 3|
|1:00-2:00||Lunch (All Youth)|
|2:00-3:00||Youth (All youth that didn’t go to Climbing Center) with Beau, Room 2|
|2:00-3:00||Youth (All youth that went to Climbing Center) with Beyond Recreation, Room 3|
|3:00-3:30||Games and Movie (All Youth, Room 3)|
|3:30-4:00||Performance for your parents with Beyond Recreation (Room 3)|
|4:00-6:00||Free Time, No Supervision Provided By Chapter|
|6:00-8:00||Bowling & Pizza|
Exhibitors & Sponsors
Please express your gratitude!
|Ryan Smith, Steve McNeil & Kim Isenberg|
|Becky Ybarra & Dan Markham|
|Kent Pointer & Ryan McFaden|
|Ken Wagg & Alex Ibarra|
|Cesar Melgoza, Gladis Murillo & Roslynn Witte|
|Judy Primeaux, Nancy Spomer & Amber Casey|
About Our Guest Speakers
John R. Beck, LCPC, MEd, MA
John Beck is a licensed therapist in private practice based in Bozeman, Montana with over 20 years of professional experience focusing on helping couples, individuals, adolescents, families, and groups in Canada and the United States.
John earned a Master’s degree in Educational Psychology from the University of Northern Colorado in 1986 and earned second Master’s degree in counseling psychology at the University of British Columbia in 1993. John received additional postgraduate training in EFT (Emotionally Focused Therapy), Structural Family Therapy, Family Systems Therapy, DBT (Dialectical Behavioral Therapy), psychodynamic therapy, and sensory-motor attachment therapy.
John’s professional experience includes counseling as well as an outreach program director in Jackson Wyoming, director of an AWARE outpatient clinic for Children and families in Bozeman and director of The Mental Health Center in Livingston.
Additionally he helped to design and facilitate a tobacco recovery and wellness pilot program (first in the State of Montana) for people with a serious mental illness and Veterans with remarkably high rates of success using an experiential approach involving nature and attachment to assist participants in profound change.
A particular professional interest is the nature of relationship attachments and how they contribute to a person’s sense of wellbeing when they feel connected and secure in their relationships.
Julie Eaton, MEd, LCPC
Julie Eaton is a licensed therapist with a private practice in Bozeman Montana. Julie earned her degree at Montana State University Bozeman in 1994 and obtained her license in 1995. Over the course of 20 years she is known for her experience with helping individuals, couples and groups work.
Julie’s professional experience has included leading over 200 groups. She has designed and written grants for community wellness, as well as, a pilot program to support tobacco recovery for individuals with a serious mental illness. Julie’s work is experiential and dynamic, leading to exciting insights in creative ways. Julie encourages development of curiosity versus judgment to allow for an expanding view of self, others and the world. Julie is known for her easy, comfortable style and creating safe experiences to foster change.
Julie currently specializes in treating Anxiety disorders with a focus on relationship, attachment, neurobiological and body/mind influences. Julie’s work with attachment therapies helps to guide individuals to “unpack” deeper emotions and re-connect relationally where once they were stuck. Her training in neurobiological and body- mind therapies help to establish safety and improved processing through emotional regulation. Julie views connection as a primary, fundamental, and universal human need~ that with deeper connection to self and others, we regain balance and joy.
Ryan Faden, JD, MPH, Manager, State Government Affairs, Western Region U.S., CSL Behring
Ryan Faden is Manager of Public Affairs for the Western United States at CSL Behring. In this role, he works with state and national patient organizations on various advocacy initiatives. Mr. Faden also contributes to the development of strategic policy positions for CSL Behring on various issues of importance. Ryan possesses a strong public policy background and knowledge of the health care industry with more than fifteen years of health care related government affairs and legal experience.
Ryan possesses a J.D. from the Seton Hall University School of Law with a concentration in Health Law and Policy. He has been admitted to the bar in New York, New Jersey and the District of Columbia. In addition, Ryan possesses both a Masters of Public Health and a Bachelor of Arts degree from the University of California at Los Angeles.
Kim Isenberg, Senior manager for Reimbursement and Advocacy with Baxter Healthcare Corporation
Kim has significant healthcare policy and advocacy experience. She is responsible for providing reimbursement support and insurance and coverage education to consumers. She works with healthcare advocacy organizations to maintain open access to all therapies for the patient community.
Kim’s past positions have included roles in state government, pharmaceutical associations, drug manufacturers and public relations firms. Her most recent position was with the state of Minnesota’s Department of Employment and Economic Development, where she was the director of the communications, analysis and research division. Prior to her role with the state, she served as senior manager of state government affairs with CSL Behring. Kim has a BA in speech communication from the University of Minnesota.
Gladis Murillo, BSN, RN, Pfizer Hemophilia
Ms. Murillo is a bilingual English/Spanish Nurse Educator Specialist focused on hemophilia. She received her Bachelors of Science in Nursing from the University of Illinois. Her nursing background includes inpatient psychiatric nursing as well as critical care at a level III neonatal intensive care unit (NICU). While working in the NICU, she looked forward to interacting with her patients’ families and enjoyed lending support and education about the condition and care of their fragile premature infants.
She knows from experience that providing information gradually and consistently decreases anxiety and empowers families to be active participants in the management of medical conditions, which then results in more positive outcomes.
Patient Assistance Programs
A great new resource from the NHF:
“While the ACA’s implementation did many great things to provide access to healthcare coverage for the hemophilia and related bleeding disorders community, affordability still remains an issue for many. NHF’s Public Policy Team is often asked about resources available to assist patients with paying their premiums or out-of-pocket costs. In response to your inquiries, we have developed this document detailing patient assistance programs that remain available to members of the bleeding disorders community. Note the "accurate as of" date in red at the top right-hand corner. As changes are made to any of the programs listed, we will do our best to update the Patient Assistance document, and make the most recent version available to you.
“We have mentioned in previous updates that some insurers are not accepting third party assistance for qualified health plans (QHPs) purchased in the health insurance marketplace. The list currently includes certain insurers in Oregon, Montana, Idaho, New York, Nebraska and Louisiana. Therefore, it is possible that consumers will not be able to use an assistance program if they are enrolled in one of these plans. ”
Patient Assistance Programs document
Family Camp 2015
June 19–21, 2015
Fairmont Hot Springs, Anaconda, Montana
For more information, visit www.fairmontmontana.com
Each summer, RMHBDA invites affected families living in Montana and Wyoming to attend a weekend retreat. The weekend is packed full of education, bonding, and fun! For the parents and teens, we will have teambuilding programming led by our guest, hemophilia leadership expert, Pat Torrey and some time to relax with other families. This is a great opportunity to learn from and share experiences with one another. We also have many great activities planned for our campers including arts & crafts projects, field games, and educational sessions for children with bleeding disorders and their siblings. Infusion classes will be offered from our HTC.
Call Brad with any questions at 406.586.4050
Save the Date!
2015 Walk for Hemophilia
Saturday, September 12, 2015
Billings, MT 59106
Registration 8:00 am
3k & 1.5k Walk 9:00 am
Contact Brad Benne at 406.586.4050 or email@example.com for fundraising support, questions, and comments.
Blood Disorder Web News
RMHBDA Quick Facts Datasheet
Our mission is to improve the quality of care and life for persons with inherited disorders, including hemophilia and von Willebrand Disease through education, peer support, resources, and referral.
RMHBDA is a 501(c)(3) nonprofit organization founded in 2000 and is a chartered chapter of the National Hemophilia Foundation and a chapter of Hemophillia Federation of America,