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Great things are going on at RMHBDA!

Save the Date!

2017 Mile High Colorado Camp

July 14–21, 2017

Leadership Pre-Camp Retreat July 14–16

July
16

When and Where?

The Hemophilia and Thrombosis Center (HTC) is proud to once again sponsor the summer camp program

Who Should Attend?

  • Children with hemophilia or other bleeding disorders
  • Siblings of the above groups
  • Mile High Colorado Camp is for ages 7–18.
  • Check back with us soon to learn about the different programs we offer at camp!

Why Attend Camp?

The purpose of camp is to learn about bleeding disorders, develop skills, and have fun! Campers will have the opportunity to meet new friends and participate in a variety of traditional camp activities. As always, we have included educational components with the goal of encouraging self-confidence and independence.

Many campers have learned to perform self-infusion, experienced teamwork, and discovered new skills during the week of camp. Staff at the Hemophilia & Thrombosis Center (HTC) and Rocky Mountain Village wants this to be a wonderful experience that creates a wealth of fond memories for your camper.

What Does It Cost?

Each family is required to pay a non-refundable $75 deposit. The remainder of the camp cost, approximately $1000 per camper, is underwritten by other sources. If you have questions or need additional information, please call Brad Benne at 406.600.2554. Scholarship forms are available. Scholarships will be granted on an individual basis.

Help Send A Child To Camp!

Make a dream come true this summer! Your contribution will send a youth to hemophilia summer camp at Mile High Camp in Colorado. Your support makes a lasting difference in the lives of children with a bleeding disorder.

RMHBDA SPONSOR AD

Two Walks! Save the Date(s)!

2017 Walk for Hemophilia

September 16 — Billings, MT

September 23 (changed) — Kalispell, MT

Rocky Mountain Hemophilia & Bleeding Disorders Association announces our Annual Montana and Wyoming Walk for Hemophilia, benefitting those suffering from bleeding disorders in the Montana and Wyoming community.

Sept
16,23

We are hosting two walks this year in Kalispell and Billings, Montana. Team and Personal Fundraisers compete for the Top Team and Personal Fundraiser Awards in the state from Montana and Wyoming. All proceeds from these fundraising efforts will benefit Rocky Mountain Hemophilia & Bleeding Disorders Association.

Using social media, online fundraising pages, and more Rocky Mountain Hemophilia & Bleeding Disorders is leveraging the power of the web to raise funds. Visit our new Facebook page, and become a fan today!

Can’t make it? We understand! But you can still participate and contribute by hosting a “mini walk,” BBQ, small party, or event in your community, or search out “virtual walkers” who can’t attend as well! Tell them they can, “sleep in, save gas, get a t-shirt,” and make a big difference for your family and families throughout Montana and Wyoming. Also, call Brad Benne to find out how you can help! Your support is appreciated, this is your organization!

Visit www.hemophilia.org/walk for more information and to register to raise critically-needed funds for our chapter of the National Hemophilia Foundation.

Info & Registration

Contact Brad Benne at 406.586.4050 or brad@rmhbda.org for fundraising support, questions, and/or comments.

RMHBDA Montana License Plates

UPDATED: Now Available!

The RMHBDA Montana License Plate is now available! https://dojmt.gov/…/pla…/service-organizations-associations/

New Programs Coordinator: Lisa Maxwell

“We (RMHBDA) are beyond fortunate to announce the hiring Lisa Maxwell as our Programs Coordinator. Lisa's experience and commitment to our chapter and to our community on both a local and national level has been critical to the success of our chapter. Her past tireless work as a volunteer and as a board member will serve our chapter well as she transitions to being an extraordinary asset at RMHBDA,” shared executive director Brad Benne.

Lisa's experience with RMHBDA includes:

  • RMHBDA Board of Directors 2005-17
  • RMHBDA Board President 2012-14
  • Past Family Camp Director
  • NHF Annual Meeting Co-Chair 2014, 2105
  • Washington Days 2009-17

In regard to her new role with RMHBDA, Lisa offerred, “This organization has given me and my family much needed education, support, and lifelong friendships. It is my hope to give back to other families all these blessings that this chapter has given me.”

Lisa will work from her home base of Great Falls, Montana, and can be contacted at lisa@rmhbda.org

Patient Assistance Programs

A great new resource from the NHF:

“While the ACA’s implementation did many great things to provide access to healthcare coverage for the hemophilia and related bleeding disorders community, affordability still remains an issue for many. NHF’s Public Policy Team is often asked about resources available to assist patients with paying their premiums or out-of-pocket costs. In response to your inquiries, we have developed this document detailing patient assistance programs that remain available to members of the bleeding disorders community. Note the "accurate as of" date in red at the top right-hand corner. As changes are made to any of the programs listed, we will do our best to update the Patient Assistance document, and make the most recent version available to you.

“We have mentioned in previous updates that some insurers are not accepting third party assistance for qualified health plans (QHPs) purchased in the health insurance marketplace. The list currently includes certain insurers in Oregon, Montana, Idaho, New York, Nebraska and Louisiana. Therefore, it is possible that consumers will not be able to use an assistance program if they are enrolled in one of these plans. ”

Patient Assistance Programs document

from RMHBDA (updated 3/9/15)

from NHF (updated 9/15/14)

Page contents

Old articles are available here

Blood Disorder Web News

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Our mission is to improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand Disease through education, peer support, resources, and referral.

RMHBDA is a 501(c)(3) nonprofit organization founded in 2000 and is a chartered chapter of the National Hemophilia Foundation and a chapter of Hemophillia Federation of America,

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