Great things are going on at RMHBDA!
RMHBDA Education Weekend 2016
Our Education Weekend will take place at the Holiday Inn, Bozeman, Montana. We need help organizing! Please contact Brad at 406.586.4050 if you are interested in serving on the Education Weekend committee — this is your organization!
2016 RMHBDA Family Camp
United Methodist Camp
21339 Methodist Camp Rd., Rollins, MT
(406) 844-3483 www.flatheadcamp.org
Each summer, RMHBDA invites affected families living in Montana and Wyoming to attend a weekend retreat. The weekend is packed full of education, bonding, and fun!
For the parents and teens, we will have teambuilding programming led by our guest, hemophilia leadership expert, Pat Torrey and some time to relax with other families. This is a great opportunity to learn from and share experiences with one another.
We also have many great activities planned for our campers including arts & crafts projects, field games, and educational sessions for children with bleeding disorders and their siblings. Infusion classes will be offered from our HTC.
Contact Brad with any questions at email@example.com, 406.586-4050
Blood Brotherhood Event
The Chartered Fishing Trip on Flathead Lake from Lakeside, MT was held August 1. We held a dinner with Sharon Funk, PT, UC/HTC at Jagz in Kalispell where 23 people attended the dinner. Sharon shared her expertise with the group regarding the many benefits of physical therapy elating to those dealing with bleeding disorders.
On Saturday, ten men and their children went charter fishing on Flathead Lake. We had a beautiful day on the water and the kids had a wonderful time.
2015 Walk for Hemophilia Results
Participation was great for our 4th Annual Montana and Wyoming Walk for Hemophilia. Altogether, over $52,000 was raised including these top fundraisers and teams — your work was awesome and deeply appreciated!
Top Individual Fundraisers
Patient Assistance Programs
A great new resource from the NHF:
“While the ACA’s implementation did many great things to provide access to healthcare coverage for the hemophilia and related bleeding disorders community, affordability still remains an issue for many. NHF’s Public Policy Team is often asked about resources available to assist patients with paying their premiums or out-of-pocket costs. In response to your inquiries, we have developed this document detailing patient assistance programs that remain available to members of the bleeding disorders community. Note the "accurate as of" date in red at the top right-hand corner. As changes are made to any of the programs listed, we will do our best to update the Patient Assistance document, and make the most recent version available to you.
“We have mentioned in previous updates that some insurers are not accepting third party assistance for qualified health plans (QHPs) purchased in the health insurance marketplace. The list currently includes certain insurers in Oregon, Montana, Idaho, New York, Nebraska and Louisiana. Therefore, it is possible that consumers will not be able to use an assistance program if they are enrolled in one of these plans. ”
Patient Assistance Programs document
from RMHBDA (updated 3/9/15)
from NHF (updated 9/15/14)
Blood Disorder Web News
RMHBDA Quick Facts Datasheet
Our mission is to improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand Disease through education, peer support, resources, and referral.
RMHBDA is a 501(c)(3) nonprofit organization founded in 2000 and is a chartered chapter of the National Hemophilia Foundation and a chapter of Hemophillia Federation of America,