Great things are going on at RMHBDA!
2016 Walk for Hemophilia
Saturday, September 10, 2016
Rocky Mountain Hemophilia & Bleeding Disorders Association announces the 4th Annual Montana and Wyoming Walk for Hemophilia, benefitting those suffering from bleeding disorders in the Montana and Wyoming community.
We are hosting a walk in Billings, Montana on September 10, registration beginning at 9 a.m. at Zoo Montana. Team and Personal Fundraisers compete for the Top Team and Personal Fundraiser Awards in the state from Montana and Wyoming. All proceeds from these fundraising efforts will benefit Rocky Mountain Hemophilia & Bleeding Disorders Association.
Using social media, online fundraising pages, and more Rocky Mountain Hemophilia & Bleeding Disorders is leveraging the power of the web to raise funds. Visit our new Facebook page, and become a fan today!
Can’t make it? We understand! But you can still participate and contribute by hosting a “mini walk,” BBQ, small party, or event in your community, or search out “virtual walkers” who can’t attend as well! Tell them they can, “sleep in, save gas, get a t-shirt,” and make a big difference for your family and families throughout Montana and Wyoming. Also, call Brad Benne to find out how you can help! Your support is appreciated, this is your organization!
. . . for more information and to register to raise critically-needed funds for our chapter of the National Hemophilia Foundation.
Contact Brad Benne at 406.586.4050 or email@example.com for fundraising support, questions, and/or comments.
2016 RMHBDA Family Camp
July 29–31, 2016
United Methodist Camp
21339 Methodist Camp Rd., Rollins, MT
(406) 844-3483 www.flatheadcamp.org
For the parents and teens, we will have teambuilding programming led by our guest, hemophilia leadership expert, Pat Torrey and some time to relax with other families. This is a great opportunity to learn from and share experiences with one another.
We also have many great activities planned for our campers including arts & crafts projects, field games, and educational sessions for children with bleeding disorders and their siblings. Infusion classes will be offered from our HTC.
Contact Brad with any questions at firstname.lastname@example.org , 406.586-4050
Handmade Levi & Custom Travel Bags
Fundraiser for The Rocky Mountain Hemophilia and Bleeding Disorders Association Wyoming Community Events
Handmade Levi and custom order travel bags are designed and created by two grandmothers dedicated to helping raise financial support for bleeding disorder communities. The bags feature large back pockets and two interior “pants” pockets perfect for cell phone, car keys, etc. Price is $45 with proceeds donated to the Rocky Mountain Hemophilia and Bleeding Disorder Association on behalf of Wyoming Bleeding Disorder Community Awareness and Support.
Patient Assistance Programs
A great new resource from the NHF:
“While the ACA’s implementation did many great things to provide access to healthcare coverage for the hemophilia and related bleeding disorders community, affordability still remains an issue for many. NHF’s Public Policy Team is often asked about resources available to assist patients with paying their premiums or out-of-pocket costs. In response to your inquiries, we have developed this document detailing patient assistance programs that remain available to members of the bleeding disorders community. Note the "accurate as of" date in red at the top right-hand corner. As changes are made to any of the programs listed, we will do our best to update the Patient Assistance document, and make the most recent version available to you.
“We have mentioned in previous updates that some insurers are not accepting third party assistance for qualified health plans (QHPs) purchased in the health insurance marketplace. The list currently includes certain insurers in Oregon, Montana, Idaho, New York, Nebraska and Louisiana. Therefore, it is possible that consumers will not be able to use an assistance program if they are enrolled in one of these plans. ”
Patient Assistance Programs document
from RMHBDA (updated 3/9/15)
from NHF (updated 9/15/14)
Blood Disorder Web News
RMHBDA Quick Facts Datasheet
Our mission is to improve the quality of care and life for persons with inherited bleeding disorders, including hemophilia and von Willebrand Disease through education, peer support, resources, and referral.
RMHBDA is a 501(c)(3) nonprofit organization founded in 2000 and is a chartered chapter of the National Hemophilia Foundation and a chapter of Hemophillia Federation of America,